D.I.D. – IF YOU HAVE A TASTE FOR TERROR…

It has been close to a year since three doctors sat down and told me that I have D.I.D. or Dissociative Identity Disorder.

I guess the best definition comes close to the following: DID is a psychiatric diagnosis that describes a condition in which a person displays multiple distinct identities or personalities (known as alter egos or alters), each with its own pattern of perceiving and interacting with the environment. In the International Statistical Classification of Diseases and Related Health Problems the name for this diagnosis was Multiple Personality Disorder. In both systems of terminology, the diagnosis requires that at least two (but usually more “personalities” or “aspects of a personality” routinely take control of the individual’s behavior with an associated memory loss that goes beyond normal forgetfulness.

The terms are always changing it seems. It’s not like SYBIL or anything you might have seen displayed in movies or on TV — tho, The United States of Tara comes close to being realistic in the goofiest and silliest way possible. I think only 2% of those diagnosed with DID display the level of personality shifts as shown in that program.

Toni Collette in The United States of Tara...

The goal of this show is to take a very difficult real mental illness and get some laughs out of the situation. My opinion on the show varies from time to time. Everything in life can be funny, but sometimes when you’re working through something there is absolutely nothing funny to be found in it. Still, I do find it somehow uplifting that this show offers hope and humor. And, of course, sometimes all you can do is laugh.

I’ve hinted about this on my blog from time to time, but I think this is the first time I’ve actually written directly about it. I’ve decided to own it. And, I miss blogging. The problem is that the vast amount of my time is spent working through this disorder to over come it. To get my life back.

Of course this always begs the question – have I ever had my life in full or in parts? Over the course of this hardcore therapy which now includes hypno-therapy I’ve discovered that I’ve been losing time (or switching) most of my life. This explains a lot. For years and years I’ve wondered why, with my exceptional memory, I am often “cloudy” on certain spans of time or actions I’ve taken. And, all those torn out pages from my journals over the years. Or things I did at work but couldn’t recall except through the covert gathering of information from others. The funny thing is that I never once questioned these losses of time. I simply plowed forward with little or no thought.

A sort of fuzzy “re-boot” of my mind without owning it.

This all started at the time I was abused as a child. What the psyche can’t handle the brain tries to find ways to distill it so that the psyche survives. Survival is the name of the game. And, oddly, that has always been my motto. …”I am a survivor!” …I can deal. …I can wing it. …I will succeed no matter what. …And, I always have. But, with great costs.

Like most men with DID it wasn’t until my 30’s that things started going haywire and I couldn’t fully deal or hide the confusion. The stress of a big career, relationships, the issue of the abuse I suffered — all of which I do remember–, and the changes of hormones in the body resulted in everything coming to a thudding crash in late 2008.

I lost my newly found and beloved job here in San Francisco as I attempted to understand exactly what was wrong with me. As my partner helped me cope and we went from one doctor to another — the first great therapist I found recognized the problem almost immediately. However, my condition was a little beyond her experience as a doctor. She slyly referred me to another doctor who had served as her mentor. As it turns out this doctor is a god send for me. She has been working with DID relating to men for over 25 years.

I guess it took me well over six months to fully accept that I was dealing with DID, but I accept it now.

I’ve taken a series of tests and it looks like I have a very good chance of defeating DID and coming to what they call a form of “integration” in which these fragments of my psyche can merge back into one. You see they are not “personalities” — there is only one mind and one personality. These are ways the mind found to deal with the pain and horrors that were too much for me to fully accept on certain levels. They are aspects of me that take over to protect me. As one gets older it catches up with you because these aspects are forever stuck in a limited emotional state the trauma created. They are irrational and unable to react in logical ways to every day challenges of stress. But, the mind is so wired at this point that when certain situations trigger panic — the “appropriate” aspect takes over and I involuntarily take a back seat as the aspect gets through the situation.

Of course I face no danger now. In fact, I haven’t faced any real danger since I was about 9 years old. But, the aspects do not get that. So, now, I spend three to four hours a week with a doctor trying to understand what each aspect is worried about — in addition to my own worries.

Confusion has become my operative mode of conduct.

When B and I went to Manhattan last week I was terrified I would “switch” and do God Knows What — however, luckily, I only “switched” twice. Of course this resulted in a couple of odd situations. Monday, I found myself on a concrete pier of the Hudson River somewhere near W67th Street. And, I had only $10 in my wallet. Guess who got to walk all the way back to W23th and 7th Ave! Fun! My legs are still sore.

But, I try to think of it as a sort of an twist of adventure in my life. And, I like to remind myself that I have not failed in my one quest — which has always been to never lead an ordinary or dull life. Tho, the time away from working is deflating and being dependent upon Social Security Disability and Medicare is so devastating to me — I am quite blessed that the support was so quickly approved. I have a home, a love who cares for me, a family and great friends who support me and I will get through this.

However, that doesn’t make it any less scary when I might be at my computer one minute and then find myself in a place I do not know around people who appear to know me the next. And, then realize that it has been several hours since I was actually at the computer.

I keep coming back to one thought. Once I do beat this — and no one is willing to put a time line to it — but it sounds like I’m looking at a couple years of tough mental work — I figure there must be a book in this some way some how. I’m not the only one dealing with this disorder and there are so many dealing with it who probably do not even realize it or are too afraid to face it.

Maybe in some way I can help them. Maybe. Fingers crossed.

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September 16, 2010. Tags: , , , , , , , , , , , , , , . Uncategorized.

11 Comments

  1. joe replied:

    Matty, hugs and loves! You’re in my thoughts and prayers and in my hear too. 🙂

    • joe replied:

      well, I meant to say heart. although my ear itches.

  2. brand new w replied:

    fingers crossed too!

    that entry was so well written and so honest, it was inspiring. your whole outlook ont his is inspiring and i commend you.

    sure hope to meet you soon – maybe next weekend when i’m in town!?! i’ll give you a call!!

  3. Old Cheeser replied:

    Matty – it’s funny, but now we’ve actually met “in the flesh” I never would have guessed that you suffered from this syndrome, you come across as so “normal”…that’s not meant to imply you’re abnormal or anything by the way! But I think you keep it all hidden well. I agree with Alan, it’s commendable that you’re going to keep working on cracking it. And I hope you and Alan have as much fun meeting up as we did!!

  4. Urspo replied:

    You are a brave soul to deal with this all; I hope posting/writing helps in the healing.

  5. john+ replied:

    Hi Matty,

    Thanks for your honesty! Just wanted to let you know that I can relate. I’m multiple, and have been dealing with this issue, and the abuse that gave rise to this issue for the last 16 years. Some days are better than others, but lately I/We have been traveling with a lot of hope. As we come to understand our parts, learn to create internal teams to cope with what’s going on, and show up for one another’s pain, We increasingly pass through challenges with greater ease. Life is full of possibilities as each of us learns to work with and help one another. Anyway, We just wanted to let you know it gets better. All the best to you Matty!

    Safe Hugs,
    John & A Few Others . . .

  6. susanne replied:

    Dear Matty,

    i know how hard it is to tell and share this with us. i think this was not easy for you. and so thank you! you know, my english isn’t so good and i didn’t understand all the words you wrote but i can feel your sorrows and your pain. i am mentally unstable for years now, in 2003-04 it was so heavy, you couldn’t imagine… i was so sick with obsessive thoughts, i couldn’t study anymore or leave the house. i felt so ashamed to tell my family, best friends and others about it. today it’s better but from time to time i got those “dark days” too. and so, being in a relationship or working is really hard for me.
    but i think, we’re (YOU ARE!) very special and here’s a song i am playing over and over again when i am feeling sad and helpless:

    love u, matty! 🙂

    susanne from germany

  7. matty03 replied:

    Thanks so much for the positive/supportive comments. This was a difficult post for me to compose and put out there.

    John + : Thanks so much for your kind email and I hope to communicate with you (all) again soon. You’ve given me some much needed hope.

    Susanne – Your English reads fine to me. And, thank you for the note and the link to the video/song. I LOVED it. Next time I have a bit of money I will need to download her song.

    Thanks, again
    matty

  8. Lubin Odana replied:

    Good luck! And I agree with Cheeser – it’s not something I would have guessed about you, had you not told it. I hope it’s something that you’re able to vanquish.

  9. Daniel replied:

    Matt, I’m really glad you’re at place of recognition and ownership of your life. I don’t envy you the work you’re doing, but I respect and admire your willingness to undertake the task of facing every part of your life. That’s really great.

  10. matty03 replied:

    Daniel! How are you? Thank you for the sweet note. I’ve not been blogging much at all lately — looks like you’ve not posted since December.

    Are you on Facebook?

    You can find me there as Glitter Stanfield

    Sending you a hug, matty

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